ME/chronic fatigue syndrome


A glimpse at how it feels to have the illness and a plea for people to support ther loved ones who suffer with it and to raise awareness.

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25 comments to ME/chronic fatigue syndrome

  • LSecret

    I’m posting this on my Facebook and sending it to my colleagues.
    I apreciate your posting this video.
    I know how you feel (-_-)

  • mellraizer

    wow. that pretty much summed it up. like nothing else.
    it is possible to get better… a awfull & incredibly long experience nevertheless.. but i hope to get there along with everyone else.
    thanks, i hope this helps understanding on all fronts : ))

  • Applechewbacca

    Whoa, this really sums up me quite a lot. Hope you feel better. x

  • Claggy

    It is a long process, but I’m on the right path. I’m currently a part of the nutrition and psychology areas of a clinic. I highly suggest checking out this link and reading around, watching videos, getting the free info packet, and just whatever you can do to. Just remove the spaces and () from it. freedomfromme (.) co (.) uk/

  • 3DeeFanatic

    @Claggy how are you recovering ?? i need to get out of it !

  • hosslady

    Thank you ♥ I also have this horrible illness and have lost my previous life because of it. Because I mostly look OK people think it’s all in your head and we know it’s not! I was actually relieved when my white cell count came back really low because it proved it was REAL.

  • Claggy

    Very good video. I am currently at the beginning of my recovery from CFS/ME after 5 years, and will soon have my life back! Thank you for helping spread awareness!

  • freedomfromme

    Thanks for this moving video. Please do have a look at the specialised videos on our channel concerning chronic fatigue syndrome

  • bundybearable

    Oh god.. Loneliness isn’t the word..

  • augustbabe1964

    oh honey i feel for you so much & completely understand how you feel. contact me anytime via my mail box – even if its just a moan it does help to share and know that u are not alone. my me gets worse each month and i sometimes despair but together we may just get there tracyx

  • kaybaron1

    I watched this video with tears streaming down my face xx

  • alittlepintail

    I take Morphine to be able to now function at any level because of the pain. My brain is mush, I could do a high level job, now i even forget to sign my own name. I was sporty, now i cant complete everyday tasks. I lost my marriage and feel no one will ever put up with my illness what do i have to offer anyone. My children dont understand they think im just lazy. Freinds try but cant comprehend you can look so well yet feel so ill. I cried when i saw this as it said it all x

  • cpettet

    i have had cfs for 9 months now and this video speaks so many feelings and thoughts i have never said, i have had alot of trouble with support from the people i most expected it , and coming to terms with the slow and unsure path the future holds, has been my biggest hurdle. But the only thing i have to hold onto is hope, and i do hope that one day i will be able to do all the things that make me who i am. And that one day i wil be able to go back to university and to work.
    Thankyou xxx

  • Anii100

    thanks for posting this video its great to see supportive videos and such, just raising awareness, ive had M.E for three years now and its so hard trying to explain to people. So thanks alot :)

  • augustbabe1964

    Thank you so much for posting this – i am having a bad few days and it really does help to know that there is understanding out there. My hubby keeps saying that he wants the old “me” back but after 3+ years i cant remember who i was back then. I have just lost my job which was my last link with my “good” life and only have my DLA appeal board to look forward too ;-(( big hug xx

  • papageilo1

    thank you for that… thank you…

  • sleepythatsnotall

    iv had CFS for about 3 years but i think im finally reaching the end, its a bit scary to say that but im going to school regularly, im walking to the bus, im even doing sport and PE!!!! (all things at one point i feared i might never do again) its a long hard road, and its cliched but im a better person for having this illness. your not alone, there is always help. dont give up, you will get through this

  • papageilo1

    i heard about a medical test that will come in the next years, its a bloodtest wich is checking the activies of some genes in the blood, these genes are 4x higher at CFS patients then on healthy persons

    sry for my bad english!

  • NikkoYM

    thank you thank you thank you for this “public service announcement”

  • FibroMeandCFShope

    Such a wonderful video. I suffer along with you. It helps to know others understand your life.

  • zefrongurl4567

    this puts all my feelings in2 words.
    thanks, i have had had M.E. 4 4 years so far…
    its hard:-(
    hope everyone is haveing a gud day with it:-)

    love
    xoxoxo

  • dashpermay

    The worst thing for me was the loneliness and the few people that understood helped me though the darkest days.

    Why do people find it so hard to understand that this is a real illness and we do not choose to be ill. just because their is no test or medical treatment for it doesn’t mean to say its not real. thanks for making this xxx

  • dashpermay

    I’m crying my eyes out!! That was just perfect the way u explained everything. I used to suffer from M.E and their is hope u can recover, I was convinced I would spend the rest of my life in bed watching the world pass me by, alone. Now I live my life again. It’s great that you are trying to raise awareness of the severity of the symptoms and how it can feel as if your life has been taken away. The cold play song was perfect for it with the words…. when u feel so tired but u cant sleep.

  • Leharik

    Great video! Well done!
    It actually made me cry because I used to have CFS too.
    My message is that IT IS possible to get well. I’m in a process of publishing my book online. Hopefully it will help many.

  • DrFrankyDolan

    Thank you so much for sharing with us! I am working hard as well to raise awareness and bring our community together.

    Great work!

    We WILL get better my friends, we will…

    Sending love.

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