- ISBN13: 9780979476938
- Condition: NEW
- Notes: Brand New from Publisher. No Remainder Mark.
Product Description
An Eight Step Protocol – Developed by the author which enabled her to fully recover from CFS – When I was three months pregnant with my second child, I caught a flu virus that changed my life. For the next four years I lived in the clutches of Chronic Fatigue Syndrome. When I realized that most of the medical profession considered my illness to be “in my head”, I felt so isolated, struggling to understand what was wrong with me knowing that it was a real physical illness. CFS shut down my life as I knew it and forced me to become a recluse spending most of my time in bed between short lived efforts to have a “normal” life. But slowly, through much trial and error, I began to understand the patterns and the cruelty of CFS. In the end, I defeated Chronic Fatigue Syndrome and now live a full and healthy life – totally free of CFS. This book shares in detail the eight step protocol that I developed and followed as I slowly and steadily regained my health. It s written in a clear, concise format, understanding the struggle that CFS sufferers have with memory and concentration. By consistently following these steps, I hope that you too can defeat Chronic Fatigue Syndrome. You don t have to live with it! My motivation for writing this book is to bring a new voice to the Chronic Fatigue dialogue – contrary to the message of a permanently compromised lifestyle which is prevalent in the medical and patient communities, there are many former CFS patients who are fully recovered. I’m one of them! My message to patients, medical practitioners and care givers is that despite the unknowns of CFS, you CAN manage those aspects of CFS that you ARE in control of. My protocol is a proactive, self-management approach implemented 24-7. Decide to defeat Chronic Fatigue Syndrome!
Defeat Chronic Fatigue Syndrome: You Don’t Have to Live with It — An Eight Step Protocol
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What patients told they have ‘CFS’ need is a real diagnosis, not advice from ‘CFS’ experts. CFS is always a misdiagnosis.
Illnesses most often misdiagnosed as ‘CFS’ include Lyme disease, vitamin deficiencies, cancer, MS, Bechet’s disease, thyroid and adrenal illnesses, FM and so on.
Many of the illnesses misdiagnosed as ‘CFS’ are testable and treatable…but only once patients and their doctors ditch the useless ‘CFS’ misdiagnosis. Many illneses can also be very serious or fatal if not correctly diagnosed and treated, and this includes Myalgic Encephalomyelitis. (M.E. is NOT the same thing as ‘CFS’! M.E. is also not invisible or untestable as ‘CFS’ is.)
The last thing patients need are books telling them ‘CFS’ can be easily cured or treated and treating them as if they each had the same disease.
People with vitamin deficiencies need that vitamin. People with Lyme disease need certain antibiotics. M.E. patinets must be advised to REST.
A correct diagnosis is everything and ‘CFS’ books like this do not help, no matter how kind they seem on the surface of things. Patients need real information relevant to their actual disease.
It is offensive to imply many of the diseases often misdiagnosed as ‘CFS’ are diseases you can CHOOSE to recover from. many fatigue diseases you can, but serious diseases like cancer and MS and M.E. you can’t. It really harms patients when poeple say you can choose to recover from ‘CFS’…because it really depends what you mean by ‘CFS.’ This can lead to serious abuse by family members and friends sadly who seem to think ‘she did it, so why can’t you.’ Hardly fair when we are talking about often very differnet diseases. Not nice stuff.
Please, if you have a ‘CFS’ (mis)diagnosis, do everything you can to find your correct diagnosis, do not accept ‘CFS’ ever as an end point to the process of diagnosis.
Jodi Bassett, The Hummingbirds’ Foundation for M.E.
Rating: 2 / 5
This book is great for those days when your brain fog has taken over and you can’t comprehend something too complicated. Good book! Great idea to make a daily journal.
Rating: 4 / 5
Provides a good step by step guide on how the author was able to defeat CFS. A powerful read.
Rating: 4 / 5
This was a well written easy to follow book for someone who is just beginning the journey of learning about this dibilitating disease. However, for us, it has been two years of suffering and trying to find answers with no luck. It was helpful in making us feel confident that we have done all there is known to help.
Rating: 4 / 5
I must confess up front that I have not — at least not yet — read this book. But I have read two dozen more or less like it in over 20 years of suffering from a fairly typical, if more severe than most, case of rapid onset CFS. All I can tell those of you out there who are ACTUALLY suffering with well-diagnosed, “CFS,” and are not yet another victimized soul who has merely finally been inserted under the CFS or ME or FM or some similar DMS numbered rubric, simply because you physician, like 99 in 100 of them, is required to check some insurance diagnosis box for you to receive your billing coverage, but who in fact, despite feeling “chronically fatigued,” “having loads of sore muscles and joints, which move mysteriously around your body over time” and also have “serious to severe sleep disorders” and/or several other of the typical CFS “diagnostic markers,” may well be suffering from any of the aforementioned conditions, or dozens of other similar, although far from identical maladies. Since so many different medical pathogens can cause symptoms which mimic the cenrtal CFS symptoms, it is very dificult to determine, especially with any alacrity, who really has CFS and who has something else that causes similar symptoms, like “Darwin’s Syndrome” to name just one other, totally REAL, but decidedly different, and probably unrelated, disease from CFS.
But, let us assume that you, like me, and zillions of other miserably semi-, or quite FULLY-invalided folks, have spent years visiting clinics throughout the U.S. and Canada etc., only to be told, even by, say, the 1 in of of the best of the lot, something like Dr. Fred Ruben, a brilliant infectious disease expert, told me in 1991: [paraphrase]: “well, I see maybe ten new cases of patients every week with almost exactly the same symptoms of which you complain. Unfortunately, all I can do is tell them and you that there is some indication that we are on the trail of a sensitive and selective diagnostic test, for CFS, but we aren’t even that far yet.”
Several other top notch physicians I have seen since — and not to toot my own horn, but I am a tenured professor at a major research university, so I have a pretty good nose for ferreting out a genuinely scientific researcher from a grant-grubbing “new age,” “holistic” impostor — have told me virtually the same thing; namely, unless the recent British studies showing that specific retro-viral sequences have indeed been detected at 97% rates in the vast majority of CFS patients, but have turned up only in a few random control cases, among those displaying no symptoms of the condition, it’s “back to the drawing board” once again however painful that may be to those of us feeling slowly weaker and worse each year.
If. however, it should turn out that many new test protocols DO vindicate the British research, it could well only be a number of years before anti-retro-viral agents, like say, Vancyclovir, or some combination of these and other drugs, may well be found that can produce and sustain remission in the vast majority of cases. As one who has never felt a single hour of my old health for over twenty years now, I certainly hope some kind of drug “cocktail,’ — ala’ current AIDS treatments — is discovered before I, and the millions of other persons who came down with this mysterious malady spreading rapidly at the end of the last millennium, are no longer still around to have some last taste of real HEALTH before we are impervious to all pain or pleasure forever.
P.S.: I will read and comment again on the book should anyone desire I do so. But, unless there is truly some new revolutionary treatment described there, of which I, an inveterate CFS monitor, have not heard, I will remain profoundly skeptical and would urge everyone else to do the same.
Dr. Bill Fusfield
Rating: 3 / 5